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Triathlon to help children who have genetic disorders
by Tribune Staff
Sep 07, 2011 | 382 views | 0 0 comments | 3 3 recommendations | email to a friend | print
SPARKS — The first “Try Eryn Tri” sprint triathlon will take place at the Sparks Marina Park on Sunday to benefit children with rare genetic disorders. The race begins at 9 a.m. The entry fee includes a technical T-shirt, catered barbecue lunch and direct support to the Coffin-Lowry Syndrome Foundation. Registration rates and details are available online at Register online or on the morning of the event.

Participants also have a chance to race against Olympic swimming medalist Lacey Nymeyer, who will be taking part in her first triathlon.

In 2007, Eryn Casey was diagnosed with a rare genetic disorder called Coffin-Lowry Syndrome. Casey struggles with learning and gross motor disabilities along with seizure-like “drop attacks.” Her parents struggled for more than four years to try and find a diagnosis for Casey. Most doctors told them she had pervasive developmental delay or autism. Finally, after seeking help from a genetic specialist at Stanford Medical Center, they were able to get a diagnosis for Casey’s disorder.

All net proceeds will be donated to the Coffin-Lowry Syndrome Foundation.

For more information, call 830-9876. The Sparks Marina Park is located at 300 Howard Drive.

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